We started the blog after discussing how much we had gone through with Cystic Fibrosis (CF). My mum, Alison was born with the genetically inherited condition and has lived with it all of our lives. We decided to start blogging to share our experiences and adventures with others. We think our blog is helpful and enlightening to everyone not just fellow CFers! The blog is a tale of two people who have experienced difficulties and hardship yet have always remained positive and optimistic. We hope others find our stories useful and uplifting.
A 45 year old mother battling Cystic Fibrosis. Was an advocate for organ donation. Diagnosed with CF aged 4 and has totally defied the odds since then. After contracting Cepacia during her pregnancy doctors told her she wouldn’t make it through to her due date. However, 21 years later she attended her daughter’s University Graduation. Alison is not eligible for a life-saving transplant due to her Cepacia and so tries to live each day as if it is her last.
Christina is a 21 year old Science graduate about to embark on a PhD in Cystic Fibrosis research at Queen’s University. She has lived with her mother’s illness her entire life and watching her mother battle the condition inspired her to follow her dreams and further study the microbiological aspect of the disease.
You can further follow our journey on Twitter @Christina1Kenny.